What to Know About children with medical Complexity: Syndromes to Know, Skills to Learn, from Non-Invasive Ventilation to Palliative Care
6° Year of course - Full year
Frequency Mandatory
- 1 CFU
- 12 hours
- Italian
- Trieste
- Opzionale
- Standard teaching
- Oral Exam
- SSD MED/38
- Free-choice subject
Knowledge and understanding: the student will have to acquire knowledge suitable for being able to explain and be able to give indications to those situations that involve the activation of pediatric palliative care and non-invasive ventilation. Ability to apply knowledge and understanding: the student must be able to apply clinical and legislative knowledge in order to be able to determine when to activate palliative care or non-invasive ventilation. Making judgements: The student must be able to use the acquired knowledge to develop his own independent judgment about the topics covered in class. Communication skills: At the end of the course the student will have to know and use appropriate technical-professional terminology and be able to correctly communicate information relating to palliative care problems and the use of non-invasive ventilation. The lessons will be carried out by encouraging students to interact in order to learn scientific vocabulary, know how to structure questions and argue their theses. The questions proposed as an independent work include open questions in which the student will have to demonstrate the ability to re-elaborate the knowledge learned. Ability to learn: The ability to learn is stimulated by deepening the knowledge acquired during the frontal lessons and verified during the same lesson hours.
Principles of pediatrics, genetics, endocrinolgy, pulmonology and pain therapy
- What is pediatric palliative care - Notes on the legislative system that regulates pediatric palliative care - The end of life in pediatrics - Management of chronic pain, home care - Indications and use of non-invasive ventilation in paediatrics - Discussion of exemplary clinical tests - Beckwith-Widemann syndrome - McCune-Albright syndrome - Septo-optic dysplasia and complex cerebral malformations - Prader-Willy syndrome - Laurence-Moon-Bardet-Bield syndrome - Noonan syndrome - George's syndrome - Mitochondrial diseases - Skeletal dysplasias Chromosomal disorders such as Turner syndrome and Klinefelter syndrome - Multiple endocrine neoplasia syndrome (MEN).
F. Panizon et al. Principi e pratica di Pediatria. 5ªed., Monduzzi ed., Bologna 2009; The Nelson Textbook of Pediatrics; Ed 2019
Lectures with original material in power point format or videos, interactive lessons with presentation of clinical cases
Any changes to the methods described here, which are necessary to ensure the application of the safety protocols related to the COVID19 emergency, will be communicated on the Department, Study Program and teaching website.
Student assessment consists of an oral exam in which illustrative clinical cases related to topics covered in class are presented. The student is expected to demonstrate the ability to discuss and reason through the proposed case. Passing the exam requires only the approval of the module.
This course explores topics closely related to one or more goals of the United Nations 2030 Agenda for Sustainable Development (SDGs)